Hearing Impairment and Deafness
- American Speech-Language and Hearing Association
- Captions On
- Cleveland Hearing and Speech Center
- Links in the CHSC site that may be helpful for researchers:
- Communications Access Realtime Translation (CART)
- Communication Service for the Deaf
- Deaf Interpreter Services
- Hearing Education and Awareness for Rockers (HEAR)
- Hearing Loss Association of America (formerly Self Help for Hard of Hearing People, or SHHH)
- International Hearing Dogs, Inc.
- National Institute on Deafness and Other Communication Disorders: National Institutes of Health
- Sprint Video Relay Services
- Agrawal Y, Platz EA, Niparko JK. Risk factors for hearing loss in US adults: data from the National Health and Nutrition Examination Survey, 1999 to 2002. Otol Neurotol. 2009 Feb;30(2):139-45.
- Bainbridge KE, Hoffman HJ, Cowie CC. Diabetes and hearing impairment in the United States: audiometric evidence from the National Health and Nutrition Examination Survey, 1999 to 2004. Ann Intern Med. 2008 Jul 1;149(1):1-10. Epub 2008 Jun 16.
- Ciletti L, Flamme GA. Prevalence of hearing impairment by gender and audiometric configuration: results from the National Health and Nutrition Examination Survey (1999-2004) and the Keokuk County Rural Health Study (1994-1998). J Am Acad Audiol. 2008 Oct;19(9):672-85.
- Mitchell P, Gopinath B, McMahon CM, Rochtchina E, Wang JJ, Boyages SC, Leeder SR. Relationship of Type 2 diabetes to the prevalence, incidence and progression of age-related hearing loss. Diabet Med. 2009 May;26(5):483-8.
- Mitchell TV, Maslin MT. How vision matters for individuals with hearing loss. Int J Audiol. 2007 Sep;46(9):500-11.
- Pollard RQ, Dean RK, O'Hearn A, Haynes SL. Adapting health education material for deaf audiences. Rehabil Psychol. 2009 May;54(2):232-8.
- Pollard RQ, Barnett S. Health-related vocabulary knowledge among deaf adults. Rehabil Psychol. 2009 May;54(2):182-5.
- Scheier DB. Barriers to health care for people with hearing loss: a review of the literature. Journal of the New York State Nurses Association, 2009 Spring-Summer; 40 (1): 4-10.
- Schoenborn CA, Heyman K. Health disparities among adults with hearing loss: United States 2000-2006. 2008. Available here.
- Slaven A. Communication and the hearing-impaired patient. Nurs Stand. 2003 Dec 3-9;18(12):39-41.
- Sommer SK, Sommer NW. When your patient is hearing impaired. RN. 2002 Dec;65(12):28-32.
- Wallhagen MI, Pettengill E, Whiteside M. Sensory impairment in older adults: Part 1: Hearing loss. Am J Nurs. 2006 Oct;106(10):40-8.
- CAST: Center for Applied Special Technology. Universal Design for Learning
- Center for Universal Design at North Carolina State University: Products and Environments for All People
- Principles of Universal Design
- Universal Design Resources (links to other UD organizations)
- National Center on Universal Design for Learning (U.S.)
- National Center on Physical Activity and Disability (U.S.)
- National Disability Authority (Ireland). Guidelines for Including People With Disability in Research
- Universal Design Alliance
- Universal Design Education Online
- American Association of Diabetes Educators, Williams A, Bartos B, Chynoweth M, Gerwitz A, Kleinbeck C, Lawson V, Shumaker S, & Sokol-McKay D, Disabilities Position Statement. The Diabetes Educator. 35(1):41-44, 2009. Available here.
- Burgstahler, S. Universal design of instruction. The Faculty Room. University of Washington. Available here.
- Connell BR et al. The principles of universal design. 1997
- Mueller JL, Inc. Universal design of products.
- Myers AR, Andresen EM. Enabling our instruments: accommodation, universal design, and access to participation in research. Arch Phys Med Rehabil 2000 Dec (12 Suppl 2): S5-S9.
- National Institute on Disability and Rehabilitation Research. Resources on Accessible/Universal Design Principles and Performance Measures. 2006. Available here.
- Rose DH, Meyer A. A Practical Reader for Universal Design in Learning. Cambridge MA: Harvard Education Press. 2006.
- Ryan RE, Prictor MJ, McLaughlin KJ, Hill SJ. Audio-visual presentation of information for informed consent for participation in clinical trials. Cochrane Database Syst Rev. 2008 Jan 23;(1):CD003717. Review. PubMed PMID: 18254029.
- Villa RA, Thousand JS, eds. Creating an Inclusive School. 2nd edition. Alexandria, VA: Association for Supervision and Curriculum Development. 2005
- Wilcox SB. Applying universal design to medical devices. Medical Device Consultants, Inc. 2003. Available here.
- Williams A. Universal design in diabetes care: an idea whose time has come. The Diabetes Educator. 2009; 35:45-57.
- Williams A and Moore S. Universal Design of Research: Inclusion of persons with disabilities in mainstream biomedical studies. Science Translational Medicine 3(82): 82cm12. 2011. Available here.
Visual Impairment and Blindness
Links in the AFB site that may be helpful for researchers:
- AFB Tech (evaluation of products for accessibility)
- Getting around
- Glossary of eye conditions
- Guidelines for Prescription Labeling and Consumer Medication Information for People with Vision Loss
- Information for professionals
- Living with diabetes and vision loss
- Reading and writing
- Section 508 compliance
- Specialized services
- Statistical snapshots
- Vision simulation video
- What is low vision?
- American Council of the Blind
Links in the ACB site that may be helpful for researchers:
- ACB/ADP audio description standards
- Braille: History and use of Braille
- Braille transcribers
- Computer products for the blind and visually impaired
- Guide dog schools
- Guide to making documents accessible to people who are blind or visually impaired
- Cleveland Sight Center
Links in the Cleveland Sight Center site that may be helpful for researchers:
- Communication Access: Braille and Recording Services
- National Eye Institute: National Institutes of Health
- National plan for eye and vision research: Low vision and blindness rehabilitation
- Simulations of visual impairment from eye diseases
- Statistics and data
- National Federation of the Blind
Links in the NFB site that may be helpful for researchers:
- Information about vision loss for professionals
- Jacobus tenBroek Library (a blindness research library)
- Products and Technology
- Resources for Learning
- Bartos BJ, Cleary ME, Kleinbeck C, Petzinger RA, Sokol-McKay DA, Whittington A, Williams AS. Diabetes and disabilities: assistive tools, services, and information. Diabetes Educ. 2008;34(4):597-8, 600, 603-5 passim.
- Beverley CA, Bath PA, Booth A. Health information needs of visually impaired people: a systematic review of the literature. Health Soc Care Community. 2004 Jan;12(1):1-24. Review. PubMed PMID: 14675361.
- Burton DM, Uslan MM, Blubaugh MV, Clements CW 3rd. Are current insulin pumps accessible to blind and visually impaired people? J Diabetes Sci Technol. 2009 May 1;3(3):613-8. PubMed PMID: 20144301; PubMed Central PMCID: PMC2769864.
- Centers for Disease Control and Prevention. Prevalence of visual impairment and selected eye diseases among persons aged > 50 years with and without diabetes --- United States 2002. 2004. Morbidity and Mortality Weekly Report; 53(45):1069-72.
- Marom L. Insulin pump access issues for visually impaired people with type 1 diabetes. Diabetes Res Clin Pract. 2010 Jul;89(1):e13-5. Epub 2010 May 4. PubMed PMID: 20444517.
- Rosenberg EA, Sperazza LC. The visually impaired patient. Am Fam Physician. 2008;77(10): 1431-6.
- Ryskulova A, Turczyn K, Makuc DM, Cotch MF, Klein RJ, Janiszewski R Self-reported age-related eye diseases and visual impairment in the United States: results of the 2002 national health interview survey. Am J Public Health. 2008 Mar;98(3):454-61.
- Sokol-Mckay D, Buskirk K, Whittaker P. Adaptive low vision and blindness techniques for blood glucose monitoring. Diabetes Educ. 2003;29(4):614-8, 620, 622 passim.
- Uslan MM, Eghtesadi K, Burton D. Accessibility of blood glucose monitoring systems for blind and visually impaired people. Diabetes Technol Ther. 2003;5(3):439-48.
- Whiteside MM, Wallhagen MI, Pettengill E. Sensory impairment in older adults: part 2: vision loss. Am J Nurs. 2006 Nov;106(11):52-61.
- Williams AS. Making diabetes education accessible for people with visual impairment. Diabetes Educ. 2009;35(4):612-21.
- Williams AS. A focus group study of accessibility and related psychosocial needs in diabetes education for people with visual impairment. Diabetes Educ. 2002;28(6); 999-1008.
- Williams AS. Accessible diabetes education materials in low-vision format. Diabetes Educ. 1999;25(5):695-8, 700, 702 passim.
- Wright LS. Training a patient with visual impairment on continuous ambulatory peritoneal dialysis. Nephrol Nurs J. 2005;32(6):675, 677.
Disabilities and Access to Health Care
- Branigan M, Stewart DE, Tardif GS, Veltman A. Perceptions of primary healthcare services among persons with physical disabilities – part 2: quality issues. MedGenMed. 2001 Apr 6;3(2):19.
- Iezzoni L. Improving health care quality and safety for people with disabilities: an interview with Lisa Iezzoni. Jt Comm J Qual Patient Saf. 2006 Jul;32(7):400-6, 357.
- Iezzoni L.I., O'Day B.L.: More than Ramps. A Guide to Improving Health Care Quality and Access for People with Disabilities. New York City: Oxford University Press, 2006.
- Kirschner KL, Breslin ML, Iezzoni L. Structural impairments that limit access to healthcare for patients with disabilities. JAMA. 2007 Mar 14;297(10):1121-5.
- Kroll T, Jones GC, Kehn M, Neri MT. Barriers and strategies affecting the utilization of primary preventive services for people with physical disabilities: a qualitative inquiry. Health Soc Care Community. 2006 Jul;14(4):284-93.
- Lawthers AG, Pransky GS, Peterson LE, Himmelstein JH. Rethinking quality in the context of persons with disability. Int J Qual Health Care. 2003 Aug;15(4):287-99.
- Morrison EH, George V, Mosqueda L. Primary care for adults with physical disabilities: perceptions from consumer and provider focus groups. Fam Med. 2008 Oct;40(9):645-51.
- National Council on Disability. The Current State of Health Care for People with Disabilities. Sept 2009. Washington DC: National Council on Disability. Available here.
- Panko Reis J, Breslin ML, Iezzoni L, Kirschner KL. It Takes More than Ramps to Solve the Crisis in Healthcare for People with Disabilities. Chicago: Rehabilitation Institute of Chicago. Sep 2004. Available here.
- Veltman A, Stewart DE, Tardif GS, Branigan M. Perceptions of primary healthcare services among people with physical disabilities – part 1: access issues. MedGenMed. 2001 Apr 6;3(2):18.